Finding out that your child has muscular dystrophy (MD) can be upsetting. You may be worried about your child's future. But many people with this disease live an active life.
There are several types of muscular dystrophy. Each type affects the body differently. Some types show up early, and others show up later. But all types are caused by inherited genes that weaken muscles. Your child's doctor may do tests to know what type your child has. These include genetic tests and a biopsy of your child's muscles.
There are three common types of muscular dystrophy.
There are many treatments to help your child stay as active as possible. These include medicine, physiotherapy, and devices to support the muscles. You can work with your doctor to make a treatment plan.
Raising a child who has muscular dystrophy can be hard. It may help to join a support group or talk with other parents who have a child with special needs, so you don't feel alone. You may also want to try counselling. It could help you understand and deal with all the emotions you may feel.
Follow-up care is a key part of your child's treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if your child is having problems. It's also a good idea to know your child's test results and keep a list of the medicines your child takes.
Call 911 anytime you think your child may need emergency care. For example, call if:
Call your doctor or nurse call line now or seek immediate medical care if:
Watch closely for changes in your child's health, and be sure to contact your doctor or nurse call line if:
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Current as of: October 14, 2016
Adam Husney, MD - Family Medicine
& Martin J. Gabica, MD - Family Medicine & A. Evan Eyler, MD, MPH - Family Medicine, Psychiatry
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