Endometriosis: Should I Have a Hysterectomy and Oophorectomy? You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them.
Endometriosis: Should I Have a Hysterectomy and Oophorectomy? Get the facts
Your options This decision aid is for women who have tried hormone therapy and have had laparoscopic surgery to remove tissue but still have severe symptoms. Other women decide to use hormone therapy before having surgery.
Key points to remember There is no cure for endometriosis. Hormone therapy or taking out tissue with laparoscopic surgery can ease pain. But pain often returns within a year or two. Taking out the ovaries (oophorectomy) and the uterus (hysterectomy) usually relieves pain. When your menstrual periods stop at around age 50 (menopause) and your estrogen Taking out the uterus and ovaries is a major surgery with short-term and long-term risks. Recovery usually takes 4 to 6 weeks. The sudden drop in estrogen after taking out the ovaries causes worse menopause symptoms osteoporosis If you have your ovaries removed, you can choose to take estrogen therapy Taking out your uterus and ovaries may be a good choice if you don't plan to have children (or more children). You also may want to have surgery if you're not close to menopause and your symptoms are so bad that you're willing to accept the risks and side effects of surgery. Compare your options
Compare Option 1 Have surgery to remove your uterus and ovaries Don't have this surgery
Compare Option 2 Have surgery to remove your uterus and ovaries Don't have this surgery
What is usually involved?
What are the benefits?
What are the risks and side effects?
Have surgery to remove your uterus and ovaries Have surgery to remove your uterus and ovaries Surgery takes about 1 to 2 hours. You may stay in the hospital for 2 or 3 days. Recovery usually takes 4 to 6 weeks. You will no longer have periods or be able to get pregnant. Your pain may get much better or go away. Problems with your bladder, bowels, or other organs may go away. You may feel that your quality of life is better. You have the risks of major surgery, which include infection, blood clots, damage to the bladder or bowels, and bleeding. You also could have changes in sexual function. You may have hot flashes, vaginal dryness, and depression because of sudden menopause. Early menopause means that your bones will start to thin earlier than they would with natural menopause. This increases the risk for osteoporosis. If you take estrogen after surgery, you have an increased risk of stroke, blood clots, and breast cancer. The pain could come back. Don't have this surgery Don't have this surgery You may keep taking hormones. You may have laparoscopic surgery (or more surgery if you had it already) to remove tissue. You may take medicines such as ibuprofen or naproxen (NSAIDs Some treatments, such as hormones, may make your symptoms better. You avoid the risks of surgery to remove your uterus and ovaries. You may be able to have children. Hormones might not relieve your pain. Or the pain could come back after you stop taking the medicine. Hormones have side effects that can include menopause symptoms, rapid bone loss, and an increase in cholesterol. Problems with other organs, such as your bladder or bowels, could start or get worse. If you have laparoscopic surgery, you have the risk of infection, bleeding, and damage to your bladder or bowels. You could have side effects from NSAIDs used for pain. Endometriosis made me miserable for a week to 10 days every month. Since my husband and I have three children and did not want any more, I decided it was time to take action to get rid of the pain. I decided that ablation made the most sense, because I wanted to keep my uterus and ovaries. My doctor talked with me about the discomfort and risks of having the wall of the uterus treated with a laser. Frankly, it didn't take more than a week to recover, since the incisions were so small. But you know, after a year or so, the pain started coming back. I'm going to have to rethink my options now. Even though my sister has had long-lasting relief from ablation, it's not for me.
My doctor told me endometriosis might be causing my painful periods. I'd never even heard of it before. She told me all about endometriosis and the treatments I could try. She suggested I try taking birth control pills and using ibuprofen before and during my period. It took a couple of months of using this system, but now I hardly have any pain. I am glad I didn't have surgery.
I have had pain before and during my period for years. I tried non-prescription and prescription medicines to control the pain. Nothing was working. Because my pain was so bad, my doctor suggested that I consider a hysterectomy. I didn't like the thought of surgery but had to do something about the pain. Since I'd already had two children, I had the surgery. It has been 6 months now, and I am glad I had the surgery.
My periods were really painful about 5 years ago. I went to my doctor, and he asked a lot of questions about my periods and did an exam and some tests. When all the tests came back normal, he said endometriosis might be the cause of my pain. He suggested a hysterectomy but did say that endometriosis can grow back in other places. I still wanted to have a child, so I said no hysterectomy. Fortunately, I did get pregnant, and ever since having my baby my periods have been so much better!
What matters most to you?
Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements.
Each pair of questions uses a 3 point scale where 3 is more important, 1 is less important and 0 is equally important. Use the right and left arrow keys to navigate the scale. Reasons to have surgery to remove my uterus and ovaries
Reasons not to have the surgery
I tried hormones and had laparoscopic surgery, and my symptoms are still bad.
Medicine is controlling my symptoms.
More important
Equally important
More important
My quality of life is suffering because of my symptoms.
My symptoms aren't hurting my quality of life.
More important
Equally important
More important
I'm willing to accept the risks and side effects of surgery.
I'm not willing to accept the risks and side effects of surgery.
More important
Equally important
More important
I don't plan to get pregnant.
I want to be able to get pregnant.
More important
Equally important
More important
I'm not close to menopause, so I don't want to wait for the symptoms to go away.
I'm close to menopause, so I prefer to wait for the symptoms to go away.
More important
Equally important
More important
My other important reasons:
My other important reasons:
More important
Equally important
More important
Where are you leaning now?
Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now.
Use the following 3 point scale where 3 is leaning toward, 1 is may be leaning toward, and 0 is undecided. Use the right and left arrow keys to navigate the scale. Having the surgery
NOT having the surgery
Leaning toward
Undecided
Leaning toward
What else do you need to make your decision?
Check the facts 1. 1, I'm close to menopause, so I could take medicine and wait for my symptoms to go away rather than have surgery. 2. 2, If I have my ovaries and uterus taken out, endometriosis will never give me pain again. 3. 3, I can take estrogen after surgery to make my bones stronger and to keep from having hot flashes and other menopause symptoms. Decide what's next 1. 1, Do you understand the options available to you?
2. 2, Are you clear about which benefits and side effects matter most to you?
3. 3, Do you have enough support and advice from others to make a choice?
Certainty 1. How sure do you feel right now about your decision? Use a 7 point scale where 1 is not sure at all, 4 is somewhat sure, and 7 is very sure. Use the right and left arrow keys to navigate the scale.
Not sure at all
Somewhat sure
Very sure
2. 2, Check what you need to do before you make this decision. 3. Use the following space to list questions, concerns, and next steps.
Your Summary
Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
Incomplete section
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them.
Endometriosis: Should I Have a Hysterectomy and Oophorectomy? Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
Get the facts Compare your options What matters most to you? Where are you leaning now? What else do you need to make your decision? 1. Get the Facts Your options This decision aid is for women who have tried hormone therapy and have had laparoscopic surgery to remove tissue but still have severe symptoms. Other women decide to use hormone therapy before having surgery.
Key points to remember There is no cure for endometriosis. Hormone therapy or taking out tissue with laparoscopic surgery can ease pain. But pain often returns within a year or two. Taking out the ovaries (oophorectomy) and the uterus (hysterectomy) usually relieves pain. When your menstrual periods stop at around age 50 (menopause) and your estrogen Taking out the uterus and ovaries is a major surgery with short-term and long-term risks. Recovery usually takes 4 to 6 weeks. The sudden drop in estrogen after taking out the ovaries causes worse menopause symptoms osteoporosis If you have your ovaries removed, you can choose to take estrogen therapy Taking out your uterus and ovaries may be a good choice if you don't plan to have children (or more children). You also may want to have surgery if you're not close to menopause and your symptoms are so bad that you're willing to accept the risks and side effects of surgery. FAQs
What is endometriosis? The endometrium
Endometriosis (say "en-doh-mee-tree-OH-sus") occurs when tissue that is similar to the endometrium grows outside of your uterus. It usually grows on the ovaries fallopian tubes
These growths are called "implants." They grow, bleed, and break down with each menstrual cycle, just like the lining of the uterus does. This can cause pain and can make it hard to get pregnant.
In some cases, scar tissue forms around implants. This also can cause pain and trouble getting pregnant.
The female hormone estrogen makes the implants grow. Because the ovaries make most of your body's estrogen, taking out the ovaries can relieve your symptoms.
How will endometriosis affect you? While some women never have symptoms, others have severe pain that can make it hard to enjoy daily activities. In some cases, the problem can affect how well your bowels, bladder, or other organs work.
Pain from implants may be mild for a few days before your menstrual period. It may get better during your period. But if an implant grows in a sensitive area such as the rectum, it can cause constant pain or pain during sex, exercise, or bowel movements.
Symptoms often get better during pregnancy and usually go away after menopause.
How well does surgery help symptoms? This surgery works very well to relieve pain from endometriosis. But pain can come back after surgery.
Taking out the uterus and ovaries is usually the last choice in treatment. This is because:
It is a major surgery with a long recovery. It makes you unable to get pregnant. It causes a sudden drop in your level of estrogen. This leads to menopause and side effects such as making your bones thinner. You can take low-dose estrogen after surgery to protect your bones and prevent symptoms of menopause. But this increases the chance that implants could come back.
What are the risks of surgery? This surgery has different types of risks.
Risks from having surgery Most women don't have problems from surgery. But problems can include:
A fever. A slight fever is common after any surgery. Trouble urinating. Continued heavy bleeding Continued pain. Pelvic pain that you had before surgery may not be helped by surgery. Change in sexual function. Infection. Rare problems, such as: Blood clots in the legs or the lungs. Scar tissue (also called adhesions). Injury to other organs, such as the bladder or bowel. A collection of blood at the surgical site. Problems from general anesthesia Severe blood loss that causes you to need more blood (transfusion). Risks from not having ovaries Without estrogen, you can have severe symptoms of menopause, such as hot flashes
If you don't want to take estrogen, you can take another type of medicine to make your bones stronger.
Risks from taking estrogen Estrogen therapy (ET) may increase the risk of health problems in a small number of women. A woman's increase in risk depends on her age, her personal risk, and when she starts ET. Some of the problems include:
Stroke. Blood clots. Gallstones. Dementia. Urinary incontinence. Why might your doctor recommend surgery? Your doctor might suggest surgery if:
You have severe symptoms. You're not close to menopause. You don't plan to get pregnant. You tried hormones or had laparoscopic surgery to remove tissue, but your symptoms are still bad. 2. Compare your options Have surgery to remove your uterus and ovaries Don't have this surgery What is usually involved? Surgery takes about 1 to 2 hours. You may stay in the hospital for 2 or 3 days. Recovery usually takes 4 to 6 weeks. You will no longer have periods or be able to get pregnant. You may keep taking hormones. You may have laparoscopic surgery (or more surgery if you had it already) to remove tissue. You may take medicines such as ibuprofen or naproxen (NSAIDs What are the benefits? Your pain may get much better or go away. Problems with your bladder, bowels, or other organs may go away. You may feel that your quality of life is better. Some treatments, such as hormones, may make your symptoms better. You avoid the risks of surgery to remove your uterus and ovaries. You may be able to have children. What are the risks and side effects? You have the risks of major surgery, which include infection, blood clots, damage to the bladder or bowels, and bleeding. You also could have changes in sexual function. You may have hot flashes, vaginal dryness, and depression because of sudden menopause. Early menopause means that your bones will start to thin earlier than they would with natural menopause. This increases the risk for osteoporosis. If you take estrogen after surgery, you have an increased risk of stroke, blood clots, and breast cancer. The pain could come back. Hormones might not relieve your pain. Or the pain could come back after you stop taking the medicine. Hormones have side effects that can include menopause symptoms, rapid bone loss, and an increase in cholesterol. Problems with other organs, such as your bladder or bowels, could start or get worse. If you have laparoscopic surgery, you have the risk of infection, bleeding, and damage to your bladder or bowels. You could have side effects from NSAIDs used for pain.
Personal stories Personal stories about surgical treatment of endometriosis These stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions.
"I have had pain before and during my period for years. I tried non-prescription and prescription medicines to control the pain. Nothing was working. Because my pain was so bad, my doctor suggested that I consider a hysterectomy. I didn't like the thought of surgery but had to do something about the pain. Since I'd already had two children, I had the surgery. It has been 6 months now, and I am glad I had the surgery."
"Endometriosis made me miserable for a week to 10 days every month. Since my husband and I have three children and did not want any more, I decided it was time to take action to get rid of the pain. I decided that ablation made the most sense, because I wanted to keep my uterus and ovaries. My doctor talked with me about the discomfort and risks of having the wall of the uterus treated with a laser. Frankly, it didn't take more than a week to recover, since the incisions were so small. But you know, after a year or so, the pain started coming back. I'm going to have to rethink my options now. Even though my sister has had long-lasting relief from ablation, it's not for me."
"My periods were really painful about 5 years ago. I went to my doctor, and he asked a lot of questions about my periods and did an exam and some tests. When all the tests came back normal, he said endometriosis might be the cause of my pain. He suggested a hysterectomy but did say that endometriosis can grow back in other places. I still wanted to have a child, so I said no hysterectomy. Fortunately, I did get pregnant, and ever since having my baby my periods have been so much better!"
"My doctor told me endometriosis might be causing my painful periods. I'd never even heard of it before. She told me all about endometriosis and the treatments I could try. She suggested I try taking birth control pills and using ibuprofen before and during my period. It took a couple of months of using this system, but now I hardly have any pain. I am glad I didn't have surgery."
3. What matters most to you? Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements.
Reasons to have surgery to remove my uterus and ovaries
Reasons not to have the surgery
I tried hormones and had laparoscopic surgery, and my symptoms are still bad.
Medicine is controlling my symptoms.
More important
Equally important
More important
My quality of life is suffering because of my symptoms.
My symptoms aren't hurting my quality of life.
More important
Equally important
More important
I'm willing to accept the risks and side effects of surgery.
I'm not willing to accept the risks and side effects of surgery.
More important
Equally important
More important
I don't plan to get pregnant.
I want to be able to get pregnant.
More important
Equally important
More important
I'm not close to menopause, so I don't want to wait for the symptoms to go away.
I'm close to menopause, so I prefer to wait for the symptoms to go away.
More important
Equally important
More important
My other important reasons:
My other important reasons:
More important
Equally important
More important
4. Where are you leaning now? Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now.
Having the surgery
NOT having the surgery
Leaning toward
Undecided
Leaning toward
5. What else do you need to make your decision? Check the facts 1. I'm close to menopause, so I could take medicine and wait for my symptoms to go away rather than have surgery.
You're right. When your menstrual periods stop and your estrogen levels drop, endometriosis growth and symptoms will probably also stop. You could take pain medicine and hormones until then.
2. If I have my ovaries and uterus taken out, endometriosis will never give me pain again.
You're right. Taking out the uterus and ovaries usually relieves pain. But not for everyone. Pain may come back in some women who have this surgery.
3. I can take estrogen after surgery to make my bones stronger and to keep from having hot flashes and other menopause symptoms.
That's right. You can choose to take estrogen therapy. It will protect your bones and prevent menopause symptoms. But talk to your doctor to make sure it's right for you.
Decide what's next 1. Do you understand the options available to you?
2. Are you clear about which benefits and side effects matter most to you?
3. Do you have enough support and advice from others to make a choice?
Certainty 1. How sure do you feel right now about your decision?
Not sure at all
Somewhat sure
Very sure
2. Check what you need to do before you make this decision.
3. Use the following space to list questions, concerns, and next steps.
Note: The "printer friendly" document will not contain all the information available in the online document some Information (e.g. cross-references to other topics, definitions or medical illustrations) is only available in the online version.
Current as of: April 30, 2024
