Overview

Cystic fibrosis is a lifelong illness that causes mucus to become thick and sticky. Mucus is the slippery substance inside the nose, throat, sinuses, and airways. With this condition, the mucus builds up and clogs passages in the body. The mucus can lead to serious breathing problems and lung disease. When it affects the pancreas, it can lead to malnutrition, diabetes, and problems with a child's growth and development. It also can lead to severe constipation and bowel blockage.

Treatments can include lung therapy, medicines, exercise, and diet changes. Some people who have this condition need to take enzymes and vitamins. There isn't a cure for cystic fibrosis. But early diagnosis and new treatments are helping people live longer.

You may be worried about how to care for your child. It is normal to feel overwhelmed. But your child's care team will help you learn to do all that your child needs.

How can you care for your child at home?

• Give your child foods that meet your child's special nutritional needs. A dietitian can help you plan meals.
• Encourage your child to exercise. It can make your child feel better. Talk to your child's doctor about how your child can be active.
• Encourage your child to drink lots of fluids. People who have CF need extra fluids. Ask your doctor how much fluid your child needs.
• Follow your doctor's directions to keep your child's airway clear.
• Make sure your child gets all the recommended childhood vaccines, as well as the pneumococcal vaccine.
• Keep your child away from smoke. Do not smoke or let anyone else smoke around your child or in your house.

Handling the challenges of CF

You and your child will struggle at times with this illness. But having a good attitude and lots of support will help you and your child cope.

• Focus on your child's strengths. Let your child know that you love and believe in them.
• Give your child some responsibility for their own care. Children who have a say in their treatment often stay healthier.
• Learn about the disease. This will help you figure out what you can do to help your child.
• Do the best you can and know that you cannot control everything.