Your Care Instructions
Hemochromatosis is the buildup of iron in the body. The iron collects in the blood, liver, heart, pancreas, joints, skin, and other organs.
Hemochromatosis is a disease that can be passed from a parent to a child (inherited). Usually, people need an abnormal gene from each parent to get the disease. You and your family members can get a genetic test to see if the gene is present. This is important, because early treatment that removes the extra iron from your body can protect your health.
Hemochromatosis may cause belly pain, weakness, tiredness, and weight loss. It also can scar the liver, cause joint pain, and darken the skin. In late stages, it can damage the heart and joints, and can cause diabetes.
Symptoms of hemochromatosis often do not appear until a person is 40 to 60 years old. Treatment removes the excess iron from the body before it causes problems. This can be done by taking blood out of your veins every week at first. Later, most people have this done every 2 or 3 months. Once in a while, doctors prescribe medicine that removes iron from the body.
If you have hemochromatosis, your family members should tell their doctors. They will have to watch for the condition as well. Early treatment can help prevent problems later.
Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse advice line (811 in most provinces and territories) if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.
Where can you learn more?
Go to https://www.healthwise.net/patientEd
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