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Nephrotic Syndrome: Care Instructions

Kidneys and their location in the body

Your Care Instructions

Healthy kidneys remove wastes from the blood. They also help balance water, salt, and mineral levels in the blood. Nephrotic syndrome is a sign that your kidneys aren't working right. When you have this kidney problem, you have high levels of protein in your urine. You may also have low levels of protein and high levels of cholesterol in your blood.

The most common symptom is swelling around the eyes or in the feet or ankles. You may also notice foamy urine or weight gain from fluid buildup. The syndrome also increases the risk of skin infections.

Diabetes is the most common cause of the syndrome. It can also be caused by kidney disease, lupus, some infections, and certain cancers. In some cases, the cause is not known.

Which treatment you get depends on your age and what health problem is causing nephrotic syndrome. Your doctor might prescribe medicines. You might also need other treatments if the syndrome is causing other problems, such as high blood pressure or high cholesterol.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself?

Work with your doctor

  • If your doctor prescribed medicines, take them as prescribed, even after you start to feel better. Call your doctor or nurse call line if you think you are having a problem with your medicine.
  • See your doctor regularly to have your kidney function checked.
  • Make sure your doctor knows about all the medicines or natural health products you take. This means anything you take with or without a prescription.
  • Get an influenza (flu) vaccine each year. And get any other vaccines your doctor suggests.

Care for yourself at home

  • Cut down on salt. This can reduce the amount of water your body retains.
  • Follow your doctor's advice for the amounts of protein and potassium you need in your diet.
  • Be gentle with your skin to prevent infection. Here are some tips:
    • Take short showers or baths using warm or cool water. Don't use hot water to bathe.
    • Use mild soaps, such as Dove or Cetaphil.
    • Pat your skin gently with towels to dry off after washing.
    • Use moisturizing lotion after you bathe. You can use it more often if your skin is dry. Choose a lotion with no alcohol.
    • Don't scratch or rub your skin.

When should you call for help?

Call 911 anytime you think you may need emergency care. For example, call if:

  • You have sudden, severe pain in your belly.

Call your doctor or nurse call line now or seek immediate medical care if:

  • You are gaining weight.
  • You have trouble breathing.
  • You have a fever.
  • You have symptoms of a skin infection, such as:
    • Increased pain, swelling, warmth, or redness.
    • Red streaks leading from the area.
    • Pus draining from the area.
    • A fever.

Watch closely for changes in your health, and be sure to contact your doctor or nurse call line if:

  • You do not get better as expected.

Where can you learn more?

Go to https://www.healthwise.net/patientEd

Enter H206 in the search box to learn more about "Nephrotic Syndrome: Care Instructions".

Care instructions adapted under license by your healthcare professional. If you have questions about a medical condition or this instruction, always ask your healthcare professional. Healthwise, Incorporated disclaims any warranty or liability for your use of this information.