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Crohn's Disease: Care Instructions

Picture of lower digestive system

Overview

Crohn's disease is a lifelong inflammatory bowel disease. Parts of the digestive tract get swollen and irritated and may develop sores called ulcers. It usually occurs in the last part of the small intestine and the first part of the large intestine.

The main symptoms of Crohn's disease are belly pain, diarrhea, fever, and weight loss. It sometimes causes problems with joints, eyes, or skin. Symptoms may be mild or severe. The disease can also go into remission (not be active). Bad attacks are often treated in the hospital with medicines and liquids through a tube in your vein (IV).

Talk with your doctor about the best treatments for you. You may need medicines that help prevent or treat flare-ups. You may need surgery to remove part of your bowel if you have an abnormal opening in the bowel (fistula), an abscess, or an obstruction.

Self-care can help reduce your symptoms.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself at home?

  • Take your medicines exactly as prescribed. Call your doctor or nurse call line if you think you are having a problem with your medicine. You will get more details on the specific medicines your doctor prescribes.
  • Do not take anti-inflammatory medicines, such as aspirin, ibuprofen (Advil, Motrin), or naproxen (Aleve). They may make your symptoms worse. Do not take any other medicines or natural health products without talking to your doctor first.
  • Avoid foods that make your symptoms worse. These might include milk, alcohol, high-fibre foods, or spicy foods.
  • Eat a healthy diet. Make sure to get enough iron. Rectal bleeding may make you lose iron. Good sources of iron include beef, lentils, spinach, raisins, and iron-enriched breads and cereals.
  • Drink liquid meal replacements if your doctor recommends them. These are high in calories and contain vitamins and minerals. Severe symptoms may make it hard for your body to absorb vitamins and minerals.
  • Do not smoke. Smoking makes Crohn's disease worse. If you need help quitting, talk to your doctor about stop-smoking programs and medicines. These can increase your chances of quitting for good.
  • Seek support from friends and family to help cope with Crohn's disease. The illness can affect all parts of your life. Get counselling if you need it.

When should you call for help?

Call 911 anytime you think you may need emergency care. For example, call if:

  • Your stools are maroon or very bloody.
  • You passed out (lost consciousness).

Call your doctor or nurse call line now or seek immediate medical care if:

  • You are vomiting.
  • You have new or worse belly pain.
  • You have a fever.
  • You cannot pass stools or gas.
  • You have new or more blood in your stools.

Watch closely for changes in your health, and be sure to contact your doctor or nurse call line if:

  • You have new or worse symptoms.
  • You are losing weight.
  • You do not get better as expected.

Where can you learn more?

Go to https://www.healthwise.net/patientEd

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Care instructions adapted under license by your healthcare professional. If you have questions about a medical condition or this instruction, always ask your healthcare professional. Healthwise, Incorporated disclaims any warranty or liability for your use of this information.