Sickle Cell Crisis: Care Instructions

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Your Care Instructions

Sickled and normal red blood cells

Sickle cell crisis is a painful episode that may begin suddenly in a person with sickle cell disease.

Sickle cell disease turns normal, round red blood cells into cells that look like sickles or crescent moons. The sickle-shaped cells can get stuck in blood vessels, blocking blood flow and causing severe pain. The pain can occur in the bones of the spine, the arms and legs, the chest, and the abdomen.

An episode may be called a "painful event" or "painful crisis." Some people who have sickle cell disease have many painful events, while others have few or none.

Treatment depends on the level of pain and how long it lasts. Sometimes taking non-prescription pain relievers can help. Or you may need stronger pain relief medicine that is prescribed or given by a doctor. You may need to be treated in the hospital.

It isn't always possible to know what sets off a painful event. But triggers include being dehydrated, cold temperatures, infection, stress, and not getting enough oxygen.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself at home?

  • Create a pain management plan with your doctor. This plan should include the types of medicines you can take and other actions you can take at home to relieve pain.
  • Drink plenty of fluids, enough so that your urine is light yellow or clear like water. If you have kidney, heart, or liver disease and have to limit fluids, talk with your doctor before you increase the amount of fluids you drink.
  • Take your medicines exactly as prescribed. Call your doctor or nurse call line if you think you are having a problem with your medicine.
  • Take pain medicines exactly as directed.
    • If the doctor gave you a prescription medicine for pain, take it as prescribed.
    • If you are not taking a prescription pain medicine, ask your doctor if you can take an over-the-counter medicine.
  • Avoid alcohol. It can make you dehydrated.
  • Dress warmly in cold weather. The cold and windy weather can lead to severe pain.
  • Do not smoke. Smoking can reduce the amount of oxygen in your blood.
  • Get plenty of sleep.

When should you call for help?

Call 911 anytime you think you may need emergency care. For example, call if:

  • You passed out (lost consciousness).

Call your doctor or nurse call line now or seek immediate medical care if:

  • You are in severe pain.
  • You are dizzy or light-headed, or you feel like you may faint.
  • You have a fever.
  • You are short of breath.
  • Your symptoms are getting worse.

Watch closely for changes in your health, and be sure to contact your doctor or nurse call line if you are not getting better as expected.

Where can you learn more?

Go to https://www.healthwise.net/patientEd

Enter F104 in the search box to learn more about "Sickle Cell Crisis: Care Instructions".

Current as of: October 13, 2016