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Learning About Stoma Reversal Surgery in Children

What is it?

During your child's ostomy surgery, the bowel was separated and attached to an opening made in the skin of your child's belly. The opening is called a stoma. In a reversal surgery, your child's bowel is stitched back together. The stoma is also closed.

How is it done?

How the stoma reversal is done depends on what type of ostomy surgery your child had. One type of surgery involves making a large cut (incision). This way takes longer to heal. The other type uses smaller cuts and a small lighted tube called a scope. It doesn't take as long to heal.

When is it done?

The stoma is closed after your child has healed from the original surgery. This healing often takes at least 6 to 8 weeks. But sometimes it can take 12 months or longer. Stoma reversal can be done if there's enough healthy bowel left to be rejoined and the bowel is working.

What can you expect after the surgery?

It's common for children to have problems with how the bowel works after a stoma reversal surgery. Your child may have frequent bowel movements. He or she may have symptoms such as constipation, loose stool, incontinence, sudden bowel urges, a skin rash, or pain. Other risks include infection in the belly and blockage in the bowel from scar tissue in the belly.

Symptoms usually get better over time. But some may remain over the long term.

Your child may need to take the same precautions as after the ostomy surgery. The doctor can tell you when it's okay for your child to return to his or her activities and routines. This may take up to several weeks or months.

How can you care for your child at home?

Your doctor may recommend things you can do at home to help improve how well your child's bowel works. You may be told to:

  • Change your child's diet. As your child's bowel heals, you may work with a dietitian to know what foods are best.
  • Give your child small, frequent meals.
  • Have your child drink plenty of fluids.
  • Use foods and medicines to make sure that your child has at least one bowel movement a day.
  • Keep a food diary. You can use it to track what your child eats and how it affects him or her.
  • Have your child do safe physical activities. These may include walking, bike riding, or non-contact sports. Your doctor may recommend others.

Keeping your child's bottom clean and dry can help prevent rash. The doctor may suggest creams to help with rash or soreness around the anus. You may also be told to give medicines for constipation or loose stool.

Dealing with a child's bowel problems can be hard. But your care team can help. You can talk with your doctor or nurse about these issues. They can help you find support and learn ways to cope.

Follow-up care is a key part of your child's treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if your child is having problems. It's also a good idea to know your child's test results and keep a list of the medicines your child takes.

Where can you learn more?

Go to https://www.healthwise.net/patientEd

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