Acromegaly: Care Instructions

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Your Care Instructions

Acromegaly (say "ack-roh-MEH-guh-lee") is a condition in which the body makes too much growth hormone. This causes abnormal growth of bones and tissues. It happens mostly in the hands and feet. It can also affect internal organs, such as the heart. The condition also can cause changes in the face. For example, the brow and lower jaw can grow and stick out, and the nasal bone can get bigger. In most cases, these changes happen slowly over many years.

People with the condition may have a greater risk of certain diseases such as diabetes, high blood pressure, and arthritis. And they may have other problems such as sleep apnea and headaches. This condition can be painful. This is because the bones may keep growing after they have reached their adult size.

Acromegaly is caused by a tumour of the pituitary gland, which is where growth hormone is made. But the tumour isn't cancer. It can be treated with medicine, surgery, radiation treatment, or some combination of these. Rarely, a tumour in a different part of the body, such as in the pancreas gland, can cause the pituitary gland to make too much growth hormone. This also can lead to acromegaly. Treatment may stop some abnormal growth, but bones don't go back to normal after the treatment.

Follow-up care is a key part of your treatment and safety. Be sure to make and go to all appointments, and call your doctor or nurse call line if you are having problems. It's also a good idea to know your test results and keep a list of the medicines you take.

How can you care for yourself at home?

  • Be safe with medicines. Take your medicines exactly as prescribed. Call your doctor or nurse call line if you think you are having a problem with your medicine.
  • This condition can change how you look. If you have trouble dealing with these changes, talk to your doctor to find a support group. Talking to other people who are going through the same thing can be helpful.

When should you call for help?

Call your doctor or nurse call line now or seek immediate medical care if:

  • You have problems with your vision.
  • You have severe headaches.
  • You get confused or have trouble thinking.
  • You are vomiting or have nausea.

Watch closely for changes in your health, and be sure to contact your doctor or nurse call line if you have any problems.

Where can you learn more?

Go to http://www.healthwise.net/ed

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Current as of: July 28, 2016