Kidney Failure: When Should I Start Dialysis?
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them.
Kidney Failure: When Should I Start Dialysis?
Get the facts
Your options
- Start kidney dialysis before you have symptoms of kidney failure or before your lab results show very poor kidney function.
- Start dialysis after you have symptoms or after your lab results get worse.
Some people may decide not to treat their kidney failure with dialysis. This information is for people who have decided to have either hemodialysis or peritoneal dialysis but who aren't certain when they should start.
Key points to remember
- At a certain point in chronic kidney disease, you may need to have dialysis or a kidney transplant to live. This stage is called kidney failure. You reach it if you have constant fluid buildup and symptoms of too much urea and other wastes in your blood. You also have it if a measure of your kidney function (estimated glomerular filtration rate, or eGFR) falls too low.
- If you don't have symptoms yet, you may choose to start dialysis or wait until your lab results show very poor kidney function or you start to have symptoms.
- You might decide to wait if you may be able to have a kidney transplant.
- Dialysis is time-consuming and can have serious side effects, such as low blood pressure, muscle cramps, and infection.
- Experts aren't sure that starting dialysis before you have symptoms helps you live longer than if you wait until your kidneys are working very poorly. How well you do on dialysis depends a lot on your age and on other health problems you may have.
- Thinking about starting dialysis may feel unsettling or even scary. If you decide to have it, dialysis will become a big part of your life. But you can take good care of yourself with a healthy diet and not smoking to help you get the most benefit from dialysis.
FAQs
Having chronic kidney disease means that for some time your kidneys have not been working the way they should. Your kidneys have the important job of filtering your blood. They remove waste products and extra fluid and flush them from your body as urine. When your kidneys don't work right, wastes build up in your blood and make you sick. When kidney function falls below a certain point, it is called kidney failure.
A measure of your kidney function (estimated glomerular filtration rate, or eGFR) is used to show how well your kidneys work. (The eGFR is calculated from the results of a creatinine test.) An eGFR of 15 millilitres per minute (mL/min) or less shows that you have kidney failure.
As your kidney function gets worse, you may:
- Feel very tired.
- Feel nauseated or vomit.
- Have swelling from fluid building up in your body.
- Not feel hungry. You may lose weight.
- Have headaches.
- Have trouble thinking.
- Have a metallic taste in your mouth.
- Have severe itching.
Kidney failure can cause serious heart, bone, and brain problems.
When you get close to kidney failure, your doctor will likely talk to you about your options. You may choose to treat your kidney failure with dialysis, to have a kidney transplant, or to have no treatment.
Dialysis is a process that filters your blood when your kidneys no longer can. It isn't a cure, but it can help you feel better and live longer. You can choose from two types of dialysis : hemodialysis (say "HEE-moh-dy-AL-uh-sus") and peritoneal dialysis (say "pair-uh-tuh-NEE-uhl dy-AL-uh-sus"):
A kidney transplant may be the best choice if you are otherwise healthy. With a new kidney, you would feel much better and be able to live a more normal life. But you may have to wait for a kidney that is a good match for your blood and tissue type. After the transplant, you would need to take medicines to keep your body from rejecting the new kidney. And you would need to see your doctor often and have blood tests to check how you're doing.
Not having dialysis or a transplant also is an option for people with kidney failure. Older adults or those with other serious health problems may decide instead to take medicines and make changes to their diet as their doctor recommends. Whatever you decide, discuss it with your family, friends, and medical team.
Deciding when to start dialysis can be confusing. Even the experts don't always agree on the best time to start or how long to wait. Waiting usually means 6 months to a year. But how long you can wait depends on several things, including your age and overall health aside from your kidneys.
Most people go on dialysis or get a kidney transplant when they have symptoms of kidney failure.
Guidelines for doctors about when to start dialysis include kidney failure symptoms, problems controlling blood pressure, problems controlling fluid, and problems with nutrition. The guidelines suggest that if you are not having these problems, you can wait to have dialysis until your eGFR is 6 mL/min. footnote 1 These are just guidelines. You and your doctor may decide to start dialysis before these problems are happening to you.
Many things to consider
Your eGFR isn't the only thing you and your doctor will look at in deciding when you should start dialysis. You will also consider:
- Whether you have swelling, nausea, or other symptoms of kidney failure.
- Your age.
- Your health aside from your kidney failure.
- How you feel—if you have the energy to do your daily activities.
- Your ability to make lifestyle changes and to commit time to dialysis.
Dialysis can help you feel better before you start to have bad symptoms. It may improve your ability to get good nutrition and reduce the chances of going into the hospital from complications of kidney failure. It also may lower blood pressure in people who have high blood pressure.
Even if you don't start dialysis, you may want to plan for dialysis if your kidney function is getting worse. You could have surgery months ahead of time to create a place, called an access, to take the blood from your body to the dialysis machine.
Dialysis—whenever it's started—can cause side effects. The longer you have dialysis, the longer you expose yourself to the chance of side effects. Hemodialysis can cause low blood pressure and heart problems, such as sudden cardiac arrest. Peritoneal dialysis increases the risk of infection in the lining of your belly (peritonitis).
If you wait, you won't have as many limits on your time and lifestyle. Hemodialysis takes about 12 or more hours a week, usually in a dialysis centre. Peritoneal dialysis needs to be done about 4 times a day, although it often can be done while you sleep.
If you decide to start dialysis, it may help to know that it's common to feel a little overwhelmed and even scared at first. It's a big change in your life. But if you choose to start dialysis, you can make good choices in your lifestyle to help you get the most from it.
- Be careful about what you eat and drink when you're on dialysis. Your doctor will tell you how much fluid, protein, and salt (sodium) you can have. A dietitian can work with you to help you plan your meals.
- Exercise to help improve your energy. Work with your doctor to make sure that you are getting the right amount of exercise.
- Avoid substances that can harm your kidneys, such as alcohol, any kind of tobacco, or illegal drugs.
- Tell your doctor about all prescription medicines, over-the-counter medicines, and natural health products that you are taking.
Compare your options
| |
|---|
What is usually involved? |
| |
|---|
What are the benefits? |
| |
|---|
What are the risks and side effects? |
| |
|---|
Start dialysisStart dialysis- You have surgery to place an access in your blood vessels (usually in your lower arm) for hemodialysis. For peritoneal dialysis, you will have a catheter placed in your belly.
- It takes a lot of time—from several times a week to every day, depending on the type of dialysis.
- If you have hemodialysis at a centre, you need to be able to get a ride or drive yourself to a centre. (But in some cases you may be able to have hemodialysis at home.)
- If you have peritoneal dialysis, it can be done at home, usually while you are asleep. Hemodialysis can also be done at home. Because you can do it every day, you may not have to do it for as long as in-centre hemodialysis.
- You will need to see your doctor often and have regular blood tests.
- You follow a diet that your doctor recommends. You may have to limit fluids you drink and not smoke.
- It may help you stay out of the hospital from complications of kidney failure.
- It may help you feel better.
- Hemodialysis can cause low blood pressure, muscle cramps, and irregular heartbeats. Peritoneal dialysis can cause an infection (peritonitis) of the lining of the belly. Some of these side effects can be dangerous.
- The catheter used for peritoneal dialysis and the access used for hemodialysis may need to be replaced if they become blocked or infected.
Wait to have dialysisWait to have dialysis- You take medicines and follow a diet that your doctor recommends. You may have to limit fluids you drink. It's also important to not smoke and to follow your doctor's advice to help you put off having dialysis.
- Your doctor sees you often to see how well your kidneys are working. You will have blood and urine tests.
- You don't have to spend hours every week doing dialysis.
- You don't have the side effects and risks of hemodialysis, such as low blood pressure and heart problems, and infections in the access areas.
- You may have symptoms such as swelling, feeling very tired, and not thinking clearly.
- You could develop complications of kidney failure that could be deadly, such as inflammation of the sac around the heart, blood pressure problems, and seizures or coma.
For years now, I've been worrying about when I might need dialysis. Even though my labs results are still okay, and my doctor says I could wait a little longer, I don't feel that great. I'm tired all the time. My doctor agreed it would be okay for me to start dialysis now and see if I start to feel better.
I'm just not ready to have dialysis. My test results are right on the edge, and I know I'd probably feel better if I did it. But I feel like having dialysis is giving up, like my life as I know it is over. It would depress me. I know I might have to do it sometime. But I'm just going to try to do everything my doctor asks me to so I can go as long as I can without it.
I feel pretty good. But my lab results have dropped a lot, so I know my kidneys are getting worse. I don't want to wait till I have symptoms, because by that point I could feel really sick. So I'm going to start dialysis while I'm still feeling okay.
I have a couple of family members who are interested in donating a kidney for me. They are having tests to see if one of them is a good match. The rest of my health is pretty good. So I'm not going to have dialysis yet.
What matters most to you?
Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements.
Reasons to have dialysis now
Reasons to wait to have dialysis
I'm ready to make lifestyle changes and commit time to dialysis.
I'm not ready to make lifestyle changes and commit time to dialysis.
More important
Equally important
More important
I don't want to wait until I feel bad and maybe have complications.
I feel good now, so I think I can wait a while longer.
More important
Equally important
More important
I'm worried because my lab results are getting worse.
My lab results aren't great, but I'm not worried about it right now.
More important
Equally important
More important
I can accept how dialysis would change my life.
I'm afraid dialysis would change my life for the worse.
More important
Equally important
More important
My other important reasons:
My other important reasons:
More important
Equally important
More important
Where are you leaning now?
Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now.
Have dialysis now
Wait to have dialysis
Leaning toward
Undecided
Leaning toward
What else do you need to make your decision?
1. How sure do you feel right now about your decision?
Not sure at all
Somewhat sure
Very sure
3. Use the following space to list questions, concerns, and next steps.
Your Summary
Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
Next steps
Which way you're leaning
How sure you are
Your comments
Key concepts that you understood
Key concepts that may need review
Credits
| Author | Healthwise Staff |
|---|
| Clinical Review Board | Clinical Review Board
All Healthwise education is reviewed by a team that includes physicians, nurses, advanced practitioners, registered dieticians, and other healthcare professionals. |
|---|
References
Citations
- Nesrallah GE, et al. (2014). Canadian Society of Nephrology 2014 clinical practice guideline for timing the initiation of chronic dialysis. Canadian Medical Association Journal, 186(2): 112–117. http://www.cmaj.ca/content/186/2/112.full.pdf+html. Accessed March 4, 2014.
You may want to have a say in this decision, or you may simply want to follow your doctor's recommendation. Either way, this information will help you understand what your choices are so that you can talk to your doctor about them.
Kidney Failure: When Should I Start Dialysis?
Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
- Get the facts
- Compare your options
- What matters most to you?
- Where are you leaning now?
- What else do you need to make your decision?
1. Get the Facts
Your options
- Start kidney dialysis before you have symptoms of kidney failure or before your lab results show very poor kidney function.
- Start dialysis after you have symptoms or after your lab results get worse.
Some people may decide not to treat their kidney failure with dialysis. This information is for people who have decided to have either hemodialysis or peritoneal dialysis but who aren't certain when they should start.
Key points to remember
- At a certain point in chronic kidney disease, you may need to have dialysis or a kidney transplant to live. This stage is called kidney failure. You reach it if you have constant fluid buildup and symptoms of too much urea and other wastes in your blood. You also have it if a measure of your kidney function (estimated glomerular filtration rate, or eGFR) falls too low.
- If you don't have symptoms yet, you may choose to start dialysis or wait until your lab results show very poor kidney function or you start to have symptoms.
- You might decide to wait if you may be able to have a kidney transplant.
- Dialysis is time-consuming and can have serious side effects, such as low blood pressure, muscle cramps, and infection.
- Experts aren't sure that starting dialysis before you have symptoms helps you live longer than if you wait until your kidneys are working very poorly. How well you do on dialysis depends a lot on your age and on other health problems you may have.
- Thinking about starting dialysis may feel unsettling or even scary. If you decide to have it, dialysis will become a big part of your life. But you can take good care of yourself with a healthy diet and not smoking to help you get the most benefit from dialysis.
FAQs
What is kidney failure?
Having chronic kidney disease means that for some time your kidneys have not been working the way they should. Your kidneys have the important job of filtering your blood. They remove waste products and extra fluid and flush them from your body as urine. When your kidneys don't work right, wastes build up in your blood and make you sick. When kidney function falls below a certain point, it is called kidney failure.
A measure of your kidney function (estimated glomerular filtration rate, or eGFR) is used to show how well your kidneys work. (The eGFR is calculated from the results of a creatinine test.) An eGFR of 15 millilitres per minute (mL/min) or less shows that you have kidney failure.
As your kidney function gets worse, you may:
- Feel very tired.
- Feel nauseated or vomit.
- Have swelling from fluid building up in your body.
- Not feel hungry. You may lose weight.
- Have headaches.
- Have trouble thinking.
- Have a metallic taste in your mouth.
- Have severe itching.
Kidney failure can cause serious heart, bone, and brain problems.
What is the treatment for kidney failure?
When you get close to kidney failure, your doctor will likely talk to you about your options. You may choose to treat your kidney failure with dialysis, to have a kidney transplant, or to have no treatment.
Dialysis is a process that filters your blood when your kidneys no longer can. It isn't a cure, but it can help you feel better and live longer. You can choose from two types of dialysis : hemodialysis (say "HEE-moh-dy-AL-uh-sus") and peritoneal dialysis (say "pair-uh-tuh-NEE-uhl dy-AL-uh-sus"):
A kidney transplant may be the best choice if you are otherwise healthy. With a new kidney, you would feel much better and be able to live a more normal life. But you may have to wait for a kidney that is a good match for your blood and tissue type. After the transplant, you would need to take medicines to keep your body from rejecting the new kidney. And you would need to see your doctor often and have blood tests to check how you're doing.
Not having dialysis or a transplant also is an option for people with kidney failure. Older adults or those with other serious health problems may decide instead to take medicines and make changes to their diet as their doctor recommends. Whatever you decide, discuss it with your family, friends, and medical team.
When do experts recommend starting dialysis?
Deciding when to start dialysis can be confusing. Even the experts don't always agree on the best time to start or how long to wait. Waiting usually means 6 months to a year. But how long you can wait depends on several things, including your age and overall health aside from your kidneys.
Most people go on dialysis or get a kidney transplant when they have symptoms of kidney failure.
Guidelines for doctors about when to start dialysis include kidney failure symptoms, problems controlling blood pressure, problems controlling fluid, and problems with nutrition. The guidelines suggest that if you are not having these problems, you can wait to have dialysis until your eGFR is 6 mL/min. 1 These are just guidelines. You and your doctor may decide to start dialysis before these problems are happening to you.
Many things to consider
Your eGFR isn't the only thing you and your doctor will look at in deciding when you should start dialysis. You will also consider:
- Whether you have swelling, nausea, or other symptoms of kidney failure.
- Your age.
- Your health aside from your kidney failure.
- How you feel—if you have the energy to do your daily activities.
- Your ability to make lifestyle changes and to commit time to dialysis.
What are the benefits of starting before symptoms are bad?
Dialysis can help you feel better before you start to have bad symptoms. It may improve your ability to get good nutrition and reduce the chances of going into the hospital from complications of kidney failure. It also may lower blood pressure in people who have high blood pressure.
Even if you don't start dialysis, you may want to plan for dialysis if your kidney function is getting worse. You could have surgery months ahead of time to create a place, called an access, to take the blood from your body to the dialysis machine.
What are the benefits of waiting?
Dialysis—whenever it's started—can cause side effects. The longer you have dialysis, the longer you expose yourself to the chance of side effects. Hemodialysis can cause low blood pressure and heart problems, such as sudden cardiac arrest. Peritoneal dialysis increases the risk of infection in the lining of your belly (peritonitis).
If you wait, you won't have as many limits on your time and lifestyle. Hemodialysis takes about 12 or more hours a week, usually in a dialysis centre. Peritoneal dialysis needs to be done about 4 times a day, although it often can be done while you sleep.
What would you need to do to get the most benefit from dialysis?
If you decide to start dialysis, it may help to know that it's common to feel a little overwhelmed and even scared at first. It's a big change in your life. But if you choose to start dialysis, you can make good choices in your lifestyle to help you get the most from it.
- Be careful about what you eat and drink when you're on dialysis. Your doctor will tell you how much fluid, protein, and salt (sodium) you can have. A dietitian can work with you to help you plan your meals.
- Exercise to help improve your energy. Work with your doctor to make sure that you are getting the right amount of exercise.
- Avoid substances that can harm your kidneys, such as alcohol, any kind of tobacco, or illegal drugs.
- Tell your doctor about all prescription medicines, over-the-counter medicines, and natural health products that you are taking.
2. Compare your options
| Start dialysis | Wait to have dialysis |
|---|
| What is usually involved? | - You have surgery to place an access in your blood vessels (usually in your lower arm) for hemodialysis. For peritoneal dialysis, you will have a catheter placed in your belly.
- It takes a lot of time—from several times a week to every day, depending on the type of dialysis.
- If you have hemodialysis at a centre, you need to be able to get a ride or drive yourself to a centre. (But in some cases you may be able to have hemodialysis at home.)
- If you have peritoneal dialysis, it can be done at home, usually while you are asleep. Hemodialysis can also be done at home. Because you can do it every day, you may not have to do it for as long as in-centre hemodialysis.
- You will need to see your doctor often and have regular blood tests.
- You follow a diet that your doctor recommends. You may have to limit fluids you drink and not smoke.
| - You take medicines and follow a diet that your doctor recommends. You may have to limit fluids you drink. It's also important to not smoke and to follow your doctor's advice to help you put off having dialysis.
- Your doctor sees you often to see how well your kidneys are working. You will have blood and urine tests.
|
|---|
| What are the benefits? | - It may help you stay out of the hospital from complications of kidney failure.
- It may help you feel better.
| - You don't have to spend hours every week doing dialysis.
- You don't have the side effects and risks of hemodialysis, such as low blood pressure and heart problems, and infections in the access areas.
|
|---|
| What are the risks and side effects? | - Hemodialysis can cause low blood pressure, muscle cramps, and irregular heartbeats. Peritoneal dialysis can cause an infection (peritonitis) of the lining of the belly. Some of these side effects can be dangerous.
- The catheter used for peritoneal dialysis and the access used for hemodialysis may need to be replaced if they become blocked or infected.
| - You may have symptoms such as swelling, feeling very tired, and not thinking clearly.
- You could develop complications of kidney failure that could be deadly, such as inflammation of the sac around the heart, blood pressure problems, and seizures or coma.
|
|---|
Personal stories
Personal stories about considering dialysis
These stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions.
"For years now, I've been worrying about when I might need dialysis. Even though my labs results are still okay, and my doctor says I could wait a little longer, I don't feel that great. I'm tired all the time. My doctor agreed it would be okay for me to start dialysis now and see if I start to feel better."
"I'm just not ready to have dialysis. My test results are right on the edge, and I know I'd probably feel better if I did it. But I feel like having dialysis is giving up, like my life as I know it is over. It would depress me. I know I might have to do it sometime. But I'm just going to try to do everything my doctor asks me to so I can go as long as I can without it."
"I feel pretty good. But my lab results have dropped a lot, so I know my kidneys are getting worse. I don't want to wait till I have symptoms, because by that point I could feel really sick. So I'm going to start dialysis while I'm still feeling okay."
"I have a couple of family members who are interested in donating a kidney for me. They are having tests to see if one of them is a good match. The rest of my health is pretty good. So I'm not going to have dialysis yet."
3. What matters most to you?
Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements.
Reasons to have dialysis now
Reasons to wait to have dialysis
I'm ready to make lifestyle changes and commit time to dialysis.
I'm not ready to make lifestyle changes and commit time to dialysis.
More important
Equally important
More important
I don't want to wait until I feel bad and maybe have complications.
I feel good now, so I think I can wait a while longer.
More important
Equally important
More important
I'm worried because my lab results are getting worse.
My lab results aren't great, but I'm not worried about it right now.
More important
Equally important
More important
I can accept how dialysis would change my life.
I'm afraid dialysis would change my life for the worse.
More important
Equally important
More important
My other important reasons:
My other important reasons:
More important
Equally important
More important
4. Where are you leaning now?
Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now.
Have dialysis now
Wait to have dialysis
Leaning toward
Undecided
Leaning toward
5. What else do you need to make your decision?
Check the facts
1. Starting dialysis earlier might help me feel better.
That's right. Starting dialysis can help you feel better.
2. Waiting to have dialysis will shorten my life.
That's right. A recent study showed no difference in survival between dialysis before symptoms and later dialysis.
Decide what's next
1. Do you understand the options available to you?
2. Are you clear about which benefits and side effects matter most to you?
3. Do you have enough support and advice from others to make a choice?
Certainty
1. How sure do you feel right now about your decision?
Not sure at all
Somewhat sure
Very sure
2. Check what you need to do before you make this decision.
3. Use the following space to list questions, concerns, and next steps.
Credits
| By | Healthwise Staff |
|---|
| Clinical Review Board | Clinical Review Board
All Healthwise education is reviewed by a team that includes physicians, nurses, advanced practitioners, registered dieticians, and other healthcare professionals. |
|---|
References
Citations
- Nesrallah GE, et al. (2014). Canadian Society of Nephrology 2014 clinical practice guideline for timing the initiation of chronic dialysis. Canadian Medical Association Journal, 186(2): 112–117. http://www.cmaj.ca/content/186/2/112.full.pdf+html. Accessed March 4, 2014.
Note: The "printer friendly" document will not contain all the information available in the online document some Information (e.g. cross-references to other topics, definitions or medical illustrations) is only available in the online version.Current as of: October 11, 2023
Author: Healthwise Staff
Clinical Review Board
All Healthwise education is reviewed by a team that includes physicians, nurses, advanced practitioners, registered dieticians, and other healthcare professionals.
Nesrallah GE, et al. (2014). Canadian Society of Nephrology 2014 clinical practice guideline for timing the initiation of chronic dialysis. Canadian Medical Association Journal, 186(2): 112–117. http://www.cmaj.ca/content/186/2/112.full.pdf+html. Accessed March 4, 2014.
