No one is ever ready to hear that their child has a serious illness and might not have the chance to grow up. You hope it never happens to you, but if it does you may not know where to start.
The news may be hard to believe at first. Remember that every family deals with getting news like this in their own way. It's important that your child's health care providers talk to you in a caring way, in private. They must work with you to respect your family's needs for how you would like to get information and how you would like to make decisions.
As a parent, it might help to:
Take things at your own pace. If you ever feel like you can't cope, talk to a friend or go see your own doctor. There are services and people who can help with the grief, sadness, and worry you might be feeling right now.
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