Thinking about your child dying is painful and takes a lot of emotional strength. But after you find out your child has a life-limiting illness, it can help to make plans with your child’s doctors and nurses about the kind of care you and your child want for the end-of-life. Having these conversations early is not about losing hope or giving up on your child.
Many families find that making choices earlier can help them to:
Planning for end-of-life care early also means your child can help make decisions, if he or she wishes. Your child may feel strongly about what to leave to friends or what to do for the funeral. These things are really hard to talk about, but they can mean a lot to your child.
You and your child’s care team and/or the palliative and end-of-life care team can write a plan for what you would like to happen when your child is dying. Having a written plan means anyone caring for your child will know exactly how to respect your family’s wishes. Add any special wishes you and your child have, such as:
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