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What is Palliative and End-of-Life Care

Nervous System Disease

Who is it for?

Many nervous system diseases don't have a cure, but that doesn't stop people with these diseases from living full lives. Some common motor neuron diseases are:

  • ALS or Lou Gehrig’s disease (amy​​otrophic lateral sclerosis)
  • Parkinson's disease
  • severe nerve damage from diabetes
  • stroke
  • multiple scler​osis (MS)
  • multisystem atrophy

What problems do nervous system diseases cause?

These disorders affect different parts of the nervous system. This can cause problems with:

  • movement (nerves and muscles not working normally)
  • how things feel on the body (sensations)
  • bladder and bowel function
  • thinking and understanding (cognition)
  • swallowing
  • pain
  • breathing, shortness of breath

How can palliative and end-of-life care help?

Palliative and end-of-life care teams can give extra support to people and their families during the difficult times in an illness. Palliative and end-of-life care can help to:

  • answer questions
  • manage symptoms
  • give emotional support
  • find other supports if people need to transition (e.g., go from home to hospital) for care​​​